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World Immunodeficiency Network

win_logo-resize-299x60-536c0d0abb082-original.gifWIN is a program that provides funding to regional and national Patient Organizations worldwide, to unite and strengthen the voices of the Primary Immunodeficiency community.

WIN works in harmony to provide meaningful support, encouragement, and assistance in developing awareness activities, educational materials, dissemination of information, medical education conferences, website development, family days, patient support, and advocacy for access to care and appropriate treatments.

Download the WIN grant application

Global Patient Organizations

globe.svgThere are Primary Immunodeficiency Patients Organizations all around the world for you to join. They provide support, knowledge, and a social environment for patients and families to learn from each other’s journeys and experiences.

Contry:
Argentina
Name:
AAPIDP–Asociacion de Ayuda al Paciente con Immunodeficiencia Primaria
Link:
aapidp.com.ar
Email:
Contry:
Australia
Name:
IDFA–Immune Deficiency Foundation Australia
Link:
idfa.org.au
Email:
Contry:
Austria
Name:
ÖSPID–Österreichische Selbsthilfegruppe primärer Immum Defekte
Link:
oespid.at
Email:
Contry:
Belarus
Name:
Save the Immunity
Link:
save-immunity.by
Email:
Contry:
Bosnia and Herzegovina
Name:
POsPID - Podrška Osobama sa Primarnim Imunodeficitima
Link:
pospid.org.rs/sr
Email:
Contry:
Brazil
Name:
ANPIC–Associação Nacional dos Portadores de Imunodeficiência Primária Congênita
Link:
anpic.org.br
Email:
Contry:
Brazil
Name:
BRAGID - Brazilian Group for Immunodeficiency
Link:
imunopediatria.org.br
Email:
Contry:
Bulgaria
Name:
Association of People with Congenital Immunodeficiency
Email:
Contry:
Canada
Name:
Immunodeficiency Canada / Immunodéficience Canada
Link:
immunodeficiency.ca
Email:
Contry:
Chile
Name:
PID Care Centre in China
Link:
ncbi.nlm.nih.gov/pmc/articles/PMC6829960
Email:
Contry:
Colombia
Name:
Fundacion Diana Garcia de Olarte
Link:
fecoer.org/fundacion-diana-garcia-de-olarte-fip
Email:
Contry:
Cyprus
Name:
Cyprus PI Association and Friends
Email:
Contry:
Cyprus
Name:
Group of People with Congenital Immune Deficiency and Friends
Link:
facebook.com/primaryimmunodeficiencycyprus
Contry:
Denmark
Name:
Immun Defekt Foreningen
Link:
idf.dk
Email:
Contry:
Ecuador
Name:
Fundación PIDE (Fundación de pacientes con Inmunodeficiencias Primarias - Ecuador)
Link:
facebook.com/FundacionPIDE.ec/about
Email:
Contry:
Egypt
Name:
Society of Nada for Egyptian Patients with Primary Immunodeficiency
Link:
facebook.com/Egyptian-Association-Nada-For-Patients-With-Primary-Immunodeficiency-885983474751522
Email:
Contry:
Estonia
Name:
Estonian Patient Society for Primary Immunodeficiencies
Link:
primaryimmune.org/international-section/estonian-resources
Email:
Contry:
Estonia
Name:
Immuunpuudulikkuse Selts
Link:
facebook.com/immuunpuudulikkus
Email:
Contry:
Finland
Name:
Immunipuutospotilaiden Yhdistys RY
Link:
immuunipuutospotilaidenyhdistys.fi
Email:
Contry:
France
Name:
IRIS–Immuno-Déficience Primitive Recherche Information Soutien
Link:
associationiris.org
Email:
Contry:
Germany
Name:
DSAI–Deutsche Selbsthilfe Angeborene Immundefekte e. V.
Link:
dsai.de
Email:
Contry:
Greece
Name:
APMONIA–Association of Greek Friends for Pediatric Immunology - Primary Immunodeficiency
Link:
paed-anosia.gr
Email:
Contry:
Greece
Name:
Galinos Immune Deficiency Association of Greece
Link:
galinossilogos.wixsite.com/galinos
Email:
Contry:
Hungary
Name:
HOPI–Hungarian Patients' Group for Immunodeficiency
Email:
Contry:
Iceland
Name:
Lind–Icelandic Organization
Email:
Contry:
India
Name:
IPSPI–Indian Patients Society for Primary Immunodeficiency
Link:
ipspiindia.org
Email:
Contry:
Ireland
Name:
IPIA–Primary Immunodeficiency Association of Ireland
Link:
ipia.info
Email:
Contry:
Israel
Name:
IFID–Israel Foundation for Inherited Immune Disorders
Email:
Contry:
Israel
Name:
The Israeli Wiskott Aldrich Association
Link:
facebook.com/was.org.il
Email:
Contry:
Italy
Name:
AIP–Associazione Immunodeficienze Primitive
Link:
aip-it.org
Email:
Contry:
Japan
Name:
Tsubasa No Kai
Link:
npo-pidtsubasa.org
Email:
Contry:
Korea, South
Name:
Primary Immunodeficiency Families Association (일차면역결핍증환우회- Korea)
Link:
pidfan.ba.ro
Email:
Contry:
Lebanon
Name:
iFight PID Fund at AUBMC
Link:
facebook.com/ifightpidfund
Email:
Contry:
Macedonia
Name:
Parent Organization of Children with Primary Immunodeficiency
Link:
primaryimmune.org/infants-and-children
Email:
Contry:
Malaysia
Name:
Malaysia Patients Organization for Primary Immunodeficiencies
Link:
mypopi.org
Email:
Contry:
Mexico
Name:
ALAS (Iniciativa ALAS) - Alianza de Asociaciones de Inmunodeficiencias Primarias
Link:
iniciativaalas.org
Email:
Contry:
Mexico
Name:
Fundación Mexicana Para Niñas Y Niños con Inmunodeficiencias Primarias A.C. (FUMENI)
Link:
fumeni.org.mx
Email:
Contry:
Mexico
Name:
Nemo Foundation
Email:
Contry:
Netherlands
Name:
Stichting voor AfweerStoornissen
Link:
stichtingvoorafweerstoornissen.nl
Contry:
New Zealand
Name:
IDFNZ–Immune Deficiencies Foundation of New Zealand
Link:
idfnz.org.nz
Email:
Contry:
Nicaragua
Name:
ANIPIDP (Asociacion Nicaraguense de Pacientes Inmunodeficiencias Primarias)
Link:
facebook.com/anipidp.2019
Email:
Contry:
Norway
Name:
Norsk Immunsviktforening
Link:
immunsvikt.no
Contry:
Peru
Name:
ASPAIP–Asociacion Peruana de Ayuda al Inmunodeficiente Primario
Link:
datosperu.org
Email:
Contry:
Peru
Name:
Saving Children with Agammaglobulinemia (Salvando A Los Niños Con Agammaglobulinemia)
Link:
savingagammaglobulinemiapatients.org
Email:
Contry:
Poland
Name:
Immunoprotect–Association for Patients with Primary Immunodeficiency
Link:
immunoprotect.pl
Email:
Contry:
Portugal
Name:
APDIP–Associacao Protuguesa de Doentes com Imunodeficiencia Primaria
Link:
apdip.pt
Email:
Contry:
Portugal
Name:
IPOPI–International Patient Organization for Primary Immunodeficiencies
Link:
ipopi.org
Email:
Contry:
Romania
Name:
ARPID–Romanian Association for Patients with Primary Immunodeficiency
Link:
arpid.ro
Email:
Contry:
Russia
Name:
Sunflower–The Association for Primary Immunodeficient Patients
Link:
fondpodsolnuh.ru
Email:
Contry:
Serbia and Montenegro
Name:
POsPID–Support of Persons with Primary Immunodeficiency
Link:
pospid.org.rs/sr
Contry:
Slovakia
Name:
Združenie pacientov s primárnou imunodeficienciou - Slovak Association for PI patients
Link:
imunodeficit.sk
Email:
Contry:
Slovenia
Name:
Društvo za pomoč otrokom z imunskimi boleznimi - Slovenian society for children with immune disorders
Link:
imuno.si
Email:
Contry:
South Africa
Name:
PINSA–Primary Immunodeficiency Network of South Africa
Link:
pinsa.org.za
Email:
Contry:
Spain
Name:
ABADIP–Associació Balear de Dèficits Immunitaris
Link:
abadip.com
Email:
Contry:
Spain
Name:
ACADIP–Associació Catalana de Déficits Immunitaris Primaris
Link:
acadip.org
Email:
Contry:
Spain
Name:
AEDIP–Asociación Española de Déficits Inmunitarios Primarios
Link:
aedip.com
Email:
Contry:
Spain
Name:
Barcelona PID Foundation
Link:
pidfoundationbcn.org
Email:
Contry:
Sudan
Name:
SOPPI–Sudanese Organization for Patients with Primary Immunodeficiency
Link:
facebook.com/Sudanese-Organization-for-Patients-with-Primary-Immunodeficiency-Soppi-331579087487148
Contry:
Sweden
Name:
PIO–Primaer Immunbrist Organisationen
Link:
pio.nu
Email:
Contry:
Switzerland
Name:
SVAI–Schweizerische Vereinigung fur Angeborene Immundefekte
Link:
svai.ch
Email:
Contry:
Tunisia
Name:
ATun-DIPs - Amélioration de la prise en charge des enfants Tunisiens atteints de Déficits Immunitaires Primitifs
Link:
atundips.tn
Email:
Contry:
Turkey
Name:
İmmün Yetersizlik - Türk İmmünoloji Derneği
Link:
turkimmunoloji.org
Email:
Contry:
United Kingdom
Name:
CGD Society–Chronic Granulomatous Disease Society
Link:
cgdsociety.org
Email:
Contry:
United Kingdom
Name:
PID UK–Primary Immunodeficiency UK
Link:
immunodeficiencyuk.org
Email:
Contry:
United Kingdom
Name:
The XLP Research Trust
Link:
xlpresearchtrust.org
Contry:
United States
Name:
CIPO–Canadian Immunodeficiencies Patient Organization
Link:
cipo.ca
Email:
Contry:
United States
Name:
Hereditary Angioedema Association
Link:
haea.org
Contry:
United States
Name:
Hereditary Angioedema Association
Link:
haea.org
Contry:
United States
Name:
Hyper IgM Foundation
Link:
hyperigm.org
Email:
Contry:
United States
Name:
IDF–Immune Deficiency Foundation
Link:
primaryimmune.org
Email:
Contry:
United States
Name:
LAPIN–Louisiana Primary Immunodeficiency Network
Link:
lapininc.org
Email:
Contry:
United States
Name:
NEPIN–New England Primary Immunodeficiency Network
Link:
nepin.org
Email:
Contry:
United States
Name:
SAPI-Stanford Alliance for Primary Immunodeficiency
Link:
primaryimmune.stanford.edu
Contry:
United States
Name:
SEPIN–Southeast Primary Immunodeficiency Network
Email:
Contry:
United States
Name:
The CGD Association of America
Link:
cgdaa.org
Email:
Contry:
United States
Name:
Vida por la Vida - Corporación Chilena de ayuda para los Pacientes con Inmuno Deficiencias Primarias
Email:
Contry:
United States
Name:
Wiskott Aldrich Syndrome Foundation
Link:
wiskott.org
Email:
Contry:
Uruguay
Name:
AUPIDP–Asociacion Uruguaya de Pacientes con Immunodeficiencias Primarias
Link:
facebook.com/aupidp.inmunodeficienciasprimarias
Email:
Contry:
Venezuela
Name:
ACIDP-Inmunodeficiencias Primarias Venezuela Asociación Civil
Link:
inmunodeficienciasprimariasvenezuela.blogspot.com
Contry:
Vietnam
Name:
VIET PIPS
Link:
facebook.com/Suygiammiendichbamsinh
Email:

This Year’s Global Movement

WPIW-logo-horizontal-web-2.jpgThe World Primary Immunodeficiency Week 2023 campaign has just been announced! The 2023 campaign theme will be “Data Saves Lives.” Check back on our website for more details in the coming months. 

The Jeffrey Modell Foundation looks forward to once again collaborating with expert physicians, patient groups, and other individuals around the world during this global movement to raise awareness, create dialogue, and strengthen the bonds of our community.

WPIW 2022 instagramPost.png

The World PI Week 2022 campaign report is now out!

This year on 22-29 April the campaign aimed to recapture that “Access to healthcare is a basic right, and people living with primary immunodeficiency worldwide depend on it.”

Find the report here for an overview of the many activities that have been organized worldwide to show support to improve the quality of life of patients.

If you are aware of additional initiatives, please get in touch with us at: info@worldpiweek.org so these can be captured in the report as well.

Once again, thank you to everyone who has joined the Week and contributed to its success!

The outcomes press release is available here.

You can read the 2022 WPIW outcomes report here.

Spy the 10 Warning Signs of PI

Search and find the 10 Warning Signs of Primary Immunodeficiency (PI). Hint: Click below and match the colors in the chart for each item.

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WordJAM

Test your skills with a Word JAM below!

Scramble: Guess all of the most common words that can be made from the letters shown. Hint: there is one big word using all the letters. 

Search: The objective of these puzzles is to find all the hidden words. The words may be placed horizontally, vertically, or diagonally.

MIDUNCINEIEMFOCY - Scramble

Answer: Immunodeficiency

IVISCACOANTN - Scramble

Answer: Vaccinations

MGYOUNMOIL - Scramble

Answer: Immunology

CINGRNSEE - Scramble

Answer: Screening

POUINANME - Scramble

Answer: Pneumonia

AEOSTNGPH - Scramble

Answer: Pathogens

OEIINTDSAB - Scramble

Answer: Antibodies

TEIEIMASCP - Scramble

Answer: Septicemia

AMNLIGOUBLAGM - Scramble

Answer: Gammaglobulin

MYCYEHPTOL - Scramble

Answer: Lymphocyte

PRIMARY IMMUNODEFICIENCY - Search

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PI VOCABULARY - Search

pi-vocabulary_jam-resize-839x614-550894099bac1-original.jpg

NEWBORN SCREENING - Search

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IMMUNE SYSTEM - Search

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GLOBAL PI VILLAGE - Search

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PSA CAMPAIGN - Search

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JMCN US LOCATIONS - Search

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JMCN INTERNATIONAL LOCATIONS - Search

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SCIENCE - Search

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FOUNDATION - Search

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WORLD PI WEEK - Search

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Immune System Games

Test your knowledge about the Immune System with the games below!

Coloring the Global PI Village

cotton-candy.svgThe Kids Zone was created as a special place for you to unwind and enjoy some fun activities. To begin the fun, find a cool design from the Global Village and then make it your own. Download a coloring page to get started.

Step right up, get involved! In the park, we like to have fun and celebrate. See those red balloons? I can’t take credit for the idea, but our World PI Week
  • Step right up, get involved! In the park, we like to have fun and celebrate. See those red balloons? I can’t take credit for the idea, but our World PI Week
  • balloon launch is full of hope, inspiration, and meaning! What better way to raise awareness than to join together, hand-in-hand, around the world! Feel inspired?
  • Patient Organizations can channel this inspiration by applying for a WIN Grant! Kids, we have a Zone just for you! So explore, and I’ll see you on the roller coaster!