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Rare Disease Day

Download the printable activities below to participate in Rare Disease Day. Each PDF is designed to help patients, families, and supporters of the Primary Immunodeficiency (PI) community reflect, share their story, and raise awareness. Simply download any file, print it, and make it your own!


  • What Makes Me Rare?Download
  • My Rare Superpower Is…Download
  • Being Rare Has Taught Me…Download
  • My Rare Journey in One WordDownload
  • I Advocate ByDownload
  • My Rare Support System Looks LikeDownload
  • If My Rare Disease Were a Character, It Would Look LikeDownload
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In 2024, The Jeffrey Modell Foundation received the highest four-star rating from Charity Navigator for the 9th consecutive year, ranking #1 in Immunology out of 10,000 organizations evaluated worldwide.

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