Early diagnosis can often mean a world of difference because it translates to early intervention. The Jeffrey Modell Foundation empowers our community with “Calls to Action”. Together, with our global partners, we are strong advocates committed to enhancing earliest possible diagnosis with access to equal and appropriate treatments for all patients around the world. Our efforts have brought us to where we are today. Please see the results below.
Over 300 international expert immunologists pledged to continue encouragement and support of physician education and public awareness relating to all Primary Immunodeficiencies to physicians, health officials and the public.
Signees renewed their support improved access to care, treatment, and diagnostics for patients, including the implementation of newborn screening for Severe Combined Immunodeficiency (SCID) and related T cell Lymphopenia.
Additionally, the 2020 Global Resolution calls for the development and advancement of preventative and personalized medicine and for the application of new technology for diagnosis and clinical care, including genetic sequencing, identifying the genes causing disease and developing treatments for patients with Primary Immunodeficiencies.
The Jeffrey Modell Foundation celebrated its 30th Birthday in June with a four-day Global Summit in Los Angeles, California. More than 275 world-renowned Immunologists and scientists from 52 countries gathered to share their research, as well as, their expertise in the diagnosis, treatment, and management of Primary Immunodeficiencies.
At the conclusion of the Summit, a Call to Action… a Global Resolution, was drafted and has been signed by hundreds of physician experts.
Immunologists from all Jeffrey Modell Diagnostic and Research Centers were brought together by the Jeffrey Modell Foundation for a three-day Global Summit in Berlin, Germany. The physician-experts represent the world’s leadership and are authorities in the diagnosis, treatment, and management of Primary Immunodeficiencies. At the conclusion of the Symposium, the physicians agreed on a set of guiding principles.
The Latin America Primary Immunodeficiency Community including the Latin American Society for Immunodeficiencies (LASID), the Jeffrey Modell Foundation (JMF), and the International Patient Organization for Primary Immunodeficiencies (IPOPI) invite Latin American governments to endorse and sign the Primary Immunodeficiencies Call to Action. We call on Latin American governments to take heed of these devastating and under-diagnosed diseases by developing national strategies that address Primary Immunodeficiency.
We are representing the Primary Immunodeficiency Community in Africa and worldwide. The Jeffrey Modell Foundation (JMF –info4pi.org), a global organization dedicated to early and precise diagnosis, meaningful treatments, and ultimately, cures of Primary Immunodeficiencies together with the African Society for Immunodeficiencies (ASID – http://www.asid.ma), a society that has placed Africa solidly in the concert of nations that understand and promote the knowledge and treatment of Primary Immunodeficiencies.
Software for Primary Immunodeficiency Recognition, Intervention, and Tracking
The SPIRIT® Analyzer Software is a screening tool used by healthcare organizations, hospitals, and physician group practices across the country for the identification of undiagnosed patients with Primary Immunodeficiency.
Read the full manuscript, Calculation of a Primary Immunodeficiency “Risk Vital Sign” via Population-Wide Analysis of Claims Data to Aid in Clinical Decision Support, to get better acquainted with the power of SPIRIT®!
To download the SPIRIT® Analyzer Software, please send us an email at firstname.lastname@example.org
In your email, please include the following information:
Once we receive your email, we’ll send you a Memorandum of Understanding, confirming the guidelines of the SPIRIT® Analyzer Software.
SPIRIT® is a Registered Trademark issued by the United States Patent and Trademark Office to the Jeffrey Modell Foundation. The SPIRIT® Software is provided as a public service. Any unauthorized usage, duplication, modification, or transfer of this material without expressed written consent of the Jeffrey Modell Foundation, is strictly prohibited.