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Global Patient Organizations

There are Primary Immunodeficiency Patients Organizations all around the world for you to join. They provide support, knowledge, and a social environment for patients and families to learn from each other’s journeys and experiences.

INTERNATIONAL

Argentina
AAPIDP–Asociacion de Ayuda al Paciente con Immunodeficiencia Primaria
www.aapidp.com.ar
[email protected]

Australia
IDFA–Immune Deficiency Foundation Australia
www.idfa.org.au
[email protected]

Austria
ÖSPID–Österreichische Selbsthilfegruppe primärer Immum Defekte
www.oespid.at
[email protected]

Belarus
Save the Immunity
save-immunity
[email protected]

Bosnia
POsPID - Podrška Osobama sa Primarnim Imunodeficitima
www.pospid.org.rs/sr/
d[email protected]

Brazil
ANPIC–Associação Nacional dos Portadores de Imunodeficiência Primária Congênita
www.anpic.org.br
[email protected]
BRAGID - Brazilian Group for Immunodeficiency
www.imunopediatria.org.br
[email protected]

Bulgaria
Association of People with Congenital Immunodeficiency
[email protected]

Canada
Immunodeficiency Canada / Immunodéficience Canada
www.immunodeficiency.ca
[email protected]
CIPO–Canadian Immunodeficiencies Patient Organization
www.cipo.ca
[email protected]

Chile
Vida por la Vida
Corporación Chilena de ayuda para los Pacientes con Inmuno Deficiencias Primarias
[email protected] 

China
PID Care Centre in China
[email protected] 

Colombia
Fundacion Diana Garcia de Olarte
www.fundacionfip.org.co
[email protected]

Cyprus
Cyprus PI Association and Friends
[email protected]
Group of People with Congenital Immune Deficiency and Friends
www.facebook.com/Group of People with Congenital Immune Deficiency and Friends

Denmark
Immun Defekt Foreningen
www.idf.dk
[email protected]

Ecuador
Fundación PIDE (Fundación de pacientes con Inmunodeficiencias Primarias - Ecuador)
Fundación PIDE - Facebook
[email protected]

Egypt
Society of Nada for Egyptian Patients with Primary Immunodeficiency
[email protected]

Estonia
Estonian Patient Society for Primary Immunodeficiencies
[email protected]
Immuunpuudulikkuse Selts
[email protected] | facebook.com/immuunpuudulikkus

Finland
Immunipuutospotilaiden Yhdistys RY
www.imppu.fi
[email protected]

France
IRIS–Immuno-Déficience Primitive Recherche Information Soutien
www.associationiris.org
[email protected]

Germany
DSAI–Deutsche Selbsthilfe Angeborene Immundefekte e. V.
www.dsai.de
[email protected]

Greece
APMONIA–Association of Greek Friends for Pediatric Immunology - Primary Immunodeficiency
www.paed-anosia.gr
[email protected]

Galinos Immune Deficiency Association of Greece
www.galinossilogos.wixsite.com/galinos
[email protected]

Hungary
HOPI–Hungarian Patients' Group for Immunodeficiency
[email protected]

Iceland
Lind–Icelandic Organization
[email protected] | [email protected]

India
IPSPI–Indian Patients Society for Primary Immunodeficiency
www.ipspiindia.org
[email protected]

Ireland
IPIA–Primary Immunodeficiency Association of Ireland
www.ipia.info
[email protected]

Israel
IFID–Israel Foundation for Inherited Immune Disorders
[email protected]
The Israeli Wiskott Aldrich Association
The Israeli Wiskott Aldrich Association - Facebook
[email protected]

Italy
AIP–Associazione Immunodeficienze Primitive
www.aip-it.org
[email protected]

Japan
Tsubasa No Kai
www.npo-pidtsubasa.org
[email protected]

Latin American
ALAS (Iniciativa ALAS)
Alianza de Asociaciones de Inmunodeficiencias Primarias
IniciativaALAS.org
[email protected]

Lebanon
iFight PID Fund at AUBMC
iFightPID.org
[email protected]

Macedonia
Parent Organization of Children with Primary Immunodeficiency
[email protected]

Malaysia
Persatuan Pesakit Imunodifisiensi Primer Malaysia, MyPOPI
 
Malaysia Patients Organization for Primary Immunodeficiencies
www.mypopi.org 
[email protected]

Mexico
Fundación Mexicana Para Niñas Y Niños con Inmunodeficiencias Primarias A.C. (FUMENI)
fumeni.org.mx
[email protected]

Netherlands
Stichting voor AfweerStoornissen
www.stichtingvoorafweerstoornissen.nl

New Zealand
IDFNZ–Immune Deficiencies Foundation of New Zealand
www.idfnz.org.nz
[email protected]

Nicaragua
ANIPIDP (Asociacion Nicaraguense de Pacientes Inmunodeficiencias Primarias)
facebook.com/anipidp
[email protected]

Norway
Norsk Immunsviktforening
www.immunsvikt.no

Peru
ASPAIP–Asociacion Peruana de Ayuda al Inmunodeficiente Primario
[email protected]
Saving Children with Agammaglobulinemia (Salvando A Los Niños Con Agammaglobulinemia)
www.savingagammaglobulinemiapatients.org
[email protected]

Poland
Immunoprotect–Association for Patients with Primary Immunodeficiency
www.immunoprotect.pl
[email protected]

Portugal
APDIP–Associacao Protuguesa de Doentes com Imunodeficiencia Primaria
www.apdip.pt
[email protected]

IPOPI–International Patient Organization for Primary Immunodeficiencies
www.ipopi.org
[email protected]

Romania
ARPID–Romanian Association for Patients with Primary Immunodeficiency
www.arpid.ro
[email protected]

Russia
Sunflower–The Association for Primary Immunodeficient Patients
www.fondpodsolnuh.ru
[email protected]

Serbia
POsPID–Support of Persons with Primary Immunodeficiency
www.pospid.org.rs
contact POsPID

Slovakia
Združenie pacientov s primárnou imunodeficienciou
Slovak Association for PI patients
www.imunodeficit.sk
[email protected]

Slovenia
Društvo za pomoč otrokom z imunskimi boleznimi
Slovenian society for children with immune disorders

www.imuno.si
[email protected]

South Africa
PINSA–Primary Immunodeficiency Network of South Africa
www.pinsa.org.za
[email protected]

South Korea
Primary Immunodeficiency Families Association (일차면역결핍증환우회- Korea) 
www.pidfan.ba.ro
[email protected]

Spain
ABADIP–Associació Balear de Dèficits Immunitaris
www.abadip.com
[email protected]
ACADIP–Associació Catalana de Déficits Immunitaris Primaris
www.acadip.org
[email protected]
AEDIP–Asociación Española de Déficits Inmunitarios Primarios
www.aedip.com
[email protected]
Barcelona PID Foundation

www.pidfoundationbcn.org
[email protected]

Sudan
SOPPI–Sudanese Organization for Patients with Primary Immunodeficiency

SOPPI - Facebook

Sweden
PIO–Primaer Immunbrist Organisationen

www.pio.nu
[email protected]

Switzerland
SVAI–Schweizerische Vereinigung fur Angeborene Immundefekte
www.svai.ch
[email protected]

Tunisia
ATun-DIPs - Amélioration de la prise en charge des enfants Tunisiens atteints de
Déficits Immunitaires Primitifs

www.atundips.tn
[email protected]

Turkey
İmmün Yetersizlik - Türk İmmünoloji Derneği
www.İmmün Yetersizlik - Türk İmmünoloji Derneği.org.tr
[email protected]

United Kingdom
CGD Society–Chronic Granulomatous Disease Society
www.cgdsociety.org
[email protected]
The XLP Research Trust
www.xlpresearchtrust.org
PID UK–Primary Immunodeficiency UK
www.piduk.org
[email protected]

United States
The CGD Association of America
www.cgdaa.org
[email protected]
Hereditary Angioedema Association
www.haea.org
H
yper IgM Foundation

www.hyperigm.org
[email protected]
IDF–Immune Deficiency Foundation
www.primaryimmune.org
[email protected]
LAPIN–Louisiana Primary Immunodeficiency Network
www.lapininc.org
[email protected]
Nemo Foundation
[email protected]
NEPIN–New England Primary Immunodeficiency Network
www.nepin.org
[email protected]
SAPI-Stanford Alliance for Primary Immunodeficiency
www.primaryimmune.stanford.edu
SCID Angels for Life
http://www.scidangelsforlife.com
[email protected]
SEPIN–Southeast Primary Immunodeficiency Network
[email protected]
Wiskott Aldrich Syndrome Foundation
www.thewasfoundation.org
[email protected]
XLA Life
www.xla.life
[email protected]

Uruguay
AUPIDP–Asociacion Uruguaya de Pacientes con Immunodeficiencias Primarias 
AUPIDP Facebook
[email protected]

Venezuela
ACIDP-Inmunodeficiencias Primarias Venezuela Asociación Civil
inmunodeficienciasprimariasvenezuela.com

Vietnam
VIET PIPS
facebook.com/Suygiammiendichbamsinh
[email protected]

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