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Welcome to Vicki's Corner, a space where we share stories, updates, and reflections from across the global Primary Immunodeficiency community. From patient journeys to lab breakthroughs, this is where we stay connected and inspired together.


New Jeffrey Modell Center for Informatics and Data Science Will Advance Technology for Primary Immunodeficiency Diagnosis

May 27, 2026

On April 21 we gathered with our partners and community at Virginia Tech to dedicate the first ever Jeffrey Modell Center for Informatics and Data Science. As a part of our global Jeffrey Modell Centers Networks (JMCN), this new center will focus on using data and emerging technologies like artificial intelligence to advance our mission of earliest possible diagnosis for Primary Immunodeficiency.

Virginia Tech Dedication
Jeffrey Modell Foundation and Virginia Tech leaders celebrate a new center dedicated to transforming Primary Immunodeficiency diagnosis. (Photo: Ryan Anderson for Virginia Tech)

Together with the Virginia Tech Carilion School of Medicine community, leading immunology and technology experts, and Primary Immunodeficiency patients and families we celebrated not just a new center, but a new investment in advancing and transforming the way we diagnosis Primary Immunodeficiency worldwide. This investment will tangibly impact the daily lives of the 70-90% of people living with Primary Immunodeficiency who remain undiagnosed.  Bringing data and cutting-edge technology into the diagnostic process will bring answers to the patients and families living in uncertainty. 

The Jeffrey Modell Center for Informatics and Data science is the next evolution in our decades-long work to leverage the latest technology to expand and accelerate Primary Immunodeficiency diagnosis. This ongoing work includes our SPIRIT® Analyzer, a first of its kind artificial intelligence screening tool designed to identify potential Primary Immunodeficiency patients through existing health data.

We are thrilled to add the Jeffrey Modell Center for Informatics and Data to our global Jeffrey Modell Centers Network, which connects expert immunologists for collaboration, education, and innovation. This new center will be an asset to our network of physicians and patients as we continue to meet today’s research and technology needs.

Want to join the Jeffrey Modell Centers Network (JMCN)?

The JMCN spans 93 countries with 930 physicians and over 265,000 patients advancing our collective understanding of Primary Immunodeficiency. Learn more about JMCN membership here.


The Global Education Network and Information Exchange (G.E.N.I.E.) grant was created in honor of the late Vicki Modell. G.E.N.I.E. funds educational programs with a focus on Primary Immunodeficiency to improve the quality of life of patients worldwide. G.E.N.I.E. furthers the Jeffrey Modell Foundation's mission to promote Primary Immunodeficiency awareness within healthcare systems, ensure proper access to treatment and care, and inspire cross-continental collaboration to save more lives.

Learn more about G.E.N.I.E.

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