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Welcome to Vicki's Corner, a space where we share stories, updates, and reflections from across the global Primary Immunodeficiency community. From patient journeys to lab breakthroughs, this is where we stay connected and inspired together.


Traveling with Primary Immunodeficiency

August 24, 2026

If you use immunoglobulin (IG) therapy to treat Primary Immunodeficiency, it may seem confusing or stressful to travel with it. That’s why we’re sharing a few helpful tips for traveling with IG therapy to help make your trip as smooth and stress-free as possible!

Obtain a Letter of Medical Necessity 

Consult with your medical provider to obtain a letter of medical necessity that includes your diagnosis, the medications you take, and any supplies you need to carry. 

Since the medication you’re traveling with may fall outside the typical security guidelines, this will help you communicate about your IG therapy as you navigate airport security and customs. 

Partner with your Specialty Infusion Provider 

Work with your specialty infusion provider to arrange for your supplies to be shipped to your destination. They can also help coordinate infusions at a local facility if needed. 

Make sure you give them as much advance notice as you can! This will ensure that you receive what you need on time, allowing you to enjoy your adventures without stress.

Purchase Protective and Portable Packaging

Invest in insulated travel bags and portable coolers designated for medications. Make sure your supplies are packed securely to maintain proper temperature during transit. 

Keep your cooler with you! If you’re flying, don’t transport your IG therapy in your checked luggage because of potential temperature shifts or losses.

Plan Ahead for Airport Screening

If you’re flying within the United States, notify TSA upon arrival at security about your medical supplies. Carry your letter of medical necessity and keep medications in their original packaging for easy identification at security checkpoints. 

If you’re unsure about any of the medical equipment you’re traveling with or have questions about the process you can reach out to TSA Cares for assistance.

Follow Guidance for Travel Abroad

Visit the CDC travel page for up-to-date health advisories and vaccination requirements for your destination. 

Research Your Destination

Before you leave, research local healthcare facilities near your destination in case of emergency. 

Enjoy Your Trip

Don’t let Primary Immunodeficiency prevent you from traveling! 

Make sure to follow @info4pi on social media for more content about living with Primary Immunodeficiency.


The Global Education Network and Information Exchange (G.E.N.I.E.) grant was created in honor of the late Vicki Modell. G.E.N.I.E. funds educational programs with a focus on Primary Immunodeficiency to improve the quality of life of patients worldwide. G.E.N.I.E. furthers the Jeffrey Modell Foundation's mission to promote Primary Immunodeficiency awareness within healthcare systems, ensure proper access to treatment and care, and inspire cross-continental collaboration to save more lives.

Learn more about G.E.N.I.E.

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