September is Newborn Screening Awareness Month!
Did you know that September is Newborn Screening Awareness Month? Join all of us at the Jeffrey Modell Foundation as we continue to champion newborn scr...
#WeArePI
Community stories, advocacy, and awareness initiatives from the PI community
What is SCIG?
Subcutaneous Immunoglobulin (SCIG) therapy is a form of treatment for certain Primary Immunodeficiencies...
JMF Defined - Agammaglobulinemia
We're back with another edition of JMF Defined! Today we’ll be defining a type of Primary Immunodeficiency,
JMF Defined - Rare Disease
In honor of Rare Disease Week this month, our next edition of JMF Defined explains what a RARE DISEASE is.A RARE DISEASE is a disease that affects a small percentage of the population...
JMF DEFINED – IMMUNOLOGY
Welcome to the next edition of JMF Defined! Today we’ll be defining the word IMMUNOLOGY.IMMUNOLOGY is the study of the immune system, which is our body’s main defense from germs, infe...
10 Warning Signs of APDS
Current and Future Outlook of Newborn Screening
Newborn screening saves lives—it’s that simple. By the end of 2023, nearly 42 million newborns will have been screened in the United States alone. Imagine what this number could be...
Did You Know…? Newborn Screening Facts
Did you know that newborn screening is one of the most successful public health programs worldwide? According to the Centers for Disease Control and Prevention (CDC), more than ...
What is “NEWBORN SCREENING?”
For our next edition of JMF Defined, we're sharing a detailed description of “NEWBORN SCREENING.” Newborn Screening Awareness month begins later this week!
What is a “BONE MARROW TRANSPLANT?”
We’re back with a new edition of JMF Defined! Today we’ll be defining a form of treatment called a “BONE MARROW TRANSPLANT.”A BONE MARROW TRANSPLANT ...
Our Immune System
Our immune system works 24 hours a day, 7 days a week to keep us healthy and strong! The immune system protects us from bacteria, infections, germs, and more. People living with Primary...
What is the “DIAGNOSTIC ODYSSEY”
We’re back with another issue of JMF Defined! Today we’ll be explaining one of our frequently used phrases, the “DIAGNOSTIC ODYSSEY.”The DIAGNOSTIC ODYSSEY&nb...
What does “CHRONIC” mean?
Welcome to the first edition of our new series JMF Defined! In this series, we’ll explain misunderstood and confusing medical terms so you can be better informed. In this first edition, we’l...
What is Genetic Sequencing?
You’ve heard us talk about our no-cost genetic sequencing program, “Jeffrey’s Insights.” But what is genetic sequencing, and how does it impact the quality of life for patients living with P...
¿Qué es la Inmunodeficiencia Primaria (IDP)?
Pensamos que sería útil compartir un repaso para los nuevos visitantes y seguidores que quizás no sepan qué es la inmunodeficiencia primaria (IDP).
WPIW Refresher - What is Primary Immunodeficiency?
As we prepare for WPIW next week, we thought it would be helpful to share a refresher for new visitors and followers who might not know what Primary Immunodeficiency (PI) is. Primary Im...
All About the Immune System
Our body’s number one defense from infections, germs, bacteria, and parasites is our immune system. Our immune system works 24 hours a day, 7 days a week to keep us healthy and strong! However, som...
Rare Disease Week - What is a Rare Disease?
To kick off Rare Disease Week 2023, we thought it would be helpful to provide a brief overview of rare diseases and answer some frequently asked questions. A rare disease is defined as,...
Types of Primary Immunodeficiency
Did you know that there are more than 450 unique Primary Immunodeficiency disorders that impact the immune system? Primary Immunodeficiency can be difficult to diagnose, which may result in a lengt...
Program Highlight: When I Grow Up PSA Campaign
We’ve all been asked the question, “what do you want to be when you grow up?” For patients living with Primary Immunodeficiency, the chance to live full, healthy lives isn’t always guaranteed. ...
Blood vs. Plasma Donation
In honor of International Plasma Awareness Week, we thought it would be helpful to share an overview of the differences between blood and plasma donations. The need for both types of donations is c...
Newborn Screening – Current and Future Outlook
Newborn screening saves lives—it’s that simple. To date, over 40 million babies have been screened in the United States alone. Over the years, we’ve continued to expand our efforts globally to iden...
Reminder – International Plasma Awareness Week
International Plasma Awareness week will be here before we know it! We wanted to remind our community to join the global effort to screen potential plasma donors and support confirmed donors betwee...
What Is a Chronic Disease?
Did you know that six in ten American adults have a chronic disease? Chronic diseases are more common than you might think, particularly invisible diseases like Primary Immunodeficiency.A ch...
Top 10 Most Common PIs
Earlier this year, we published a new manuscript highlighting the growth and diagnosis and treatment of PI within the JMCN. Over the years we’ve developed a survey to send to members of the Jeffrey...
All About Infusions – What is Ig Therapy?
When Jeffrey was around ten years old, he was started on intravenous gamma globulin (IVIg) therapy to replace the missing antibodies his body couldn’t produce. These treatments sometimes improved h...
10 Warning Signs of Primary Immunodeficiency
The Jeffrey Modell Foundation created the “10 Warning Signs of Primary Immunodeficiency” along with the American Red Cross and the JMF Medical Advisory Board to continue its mission to assure earli...
What are Immunoglobulins (Ig)?
We’ve shared the story of Jeffrey’s treatment before: first the painful, intramuscular injections of gamma globulin that left him sore for days, followed by the intravenous gamma globulin (IVIG) th...
Primary Immunodeficiency and Gene Sequencing
Some patients with a Primary Immunodeficiency diagnosis may have a known gene defect, while others who have a Primary Immunodeficiency diagnosis may have an unidentified gene defect.Today, t...
What are…T Cells vs. B Cells?
Our body’s number one defense from infections, germs, and bacteria is our immune system. Our immune system works 24 hours a day, 7 days a week to keep us healthy! However, some people are born with...