Vicki and Fred Modell established the Jeffrey Modell Foundation (JMF) in 1987 in memory of their son Jeffrey who died at the age of fifteen from complications of Primary Immunodeficiency (PI) - a genetic condition that is chronic, serious, and often fatal. JMF is a global non-profit organization dedicated to early diagnosis, meaningful treatments, and ultimately, cures for PI through basic and clinical research, physician and patient education, public awareness, government advocacy, patient support, newborn screening, and genetic sequencing.
The Jeffrey Modell Foundation is motivated by the opportunity to make a world of difference in the lives of patients with PI by advocating for newborn screening, promoting public awareness for PI, and developing new methods to improve diagnosis and treatment. Click on a program to learn more:
The Jeffrey Modell Foundation supports much needed research for Primary Immunodeficiencies by awarding funding to physicians and scientists working in PI-related fields. To date, JMF has awarded over $6,000,000 in grant support across our three research programs:
The Jeffrey Modell Foundation creates and disseminates educational materials and builds new programs to encourage awareness of Primary Immunodeficiencies. The goal of these educational programs is to increase knowledge about PI within the healthcare community to improve PI management, clinical care and clinical recognition.