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Young parents Fred and Vicki Modell are overjoyed by the arrival of their first child, a perfect baby boy they name Jeffrey. But just months later, it becomes clear that something is wrong. Jeffrey is diagnosed with a rare disease that leaves him frequently sick and perilously susceptible to even the most common cold. He begs his parents to “Do Something” and though they desperately try, Jeffrey ultimately succumbs to his illness at the age of 15.
Out of their devastating loss, Fred and Vicki turn to their enduring love for each other to find the strength to fulfill their promise to Jeffrey and they resolve to ‘do something.’ With just $500 in the bank, the couple sets out in search for answers to what took his life. Guided by Jeffrey’s memory and the hope to help just one child, Fred and Vicki turn pain into purpose and end up touching the lives of parents and children all across the world. Millions of lives have been forever changed because of Fred and Vicki's determination to “Do Something.”
Welcome to JMF’s blog, Vicki’s Voice! We love hearing from people in our community, and our blog provides a meaningful platform for us to communicate and connect. Here on the blog, we share more personal stories about our programs, patient experiences, Foundation milestones, caregiver health, updates from the lab, and more topics to support our global PI community.
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In honor of International Plasma Awareness Week, we are excited to share our recent interview with the Director of the Jeffrey Modell Diagnostic and Research Center in Barcelona, Spain, Pere Soler-Palacín MD, PhD.
Dr. Soler- Palacín is an Assistant Professor in the Department of Pediatric Infectious Diseases & Immunodeficiencies at Universitat Autònoma de Barcelona and Vall d'Hebron Hospital. He has been working as an expert pediatrician for over two decades. In 2020, Dr. Soler- Palacín led the efforts to establish the Jeffrey Modell Infusion Center in Barcelona. Without his constant efforts, care, and dedication to patients, the center would not be where it is today. We hope you enjoy learning from our colleague and friend!