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Press Releases

fliers.svgIt’s always busy in the Global Village, and that’s why we want to share all the important activities and topics at the Town Hall. This is where you can find all of our press releases on global awareness, physician education, research, patient support, advocacy, and more.

Jeffrey Modell Foundation Awards $3.7 Million For Global Primary Immunodeficiency Research

To date, $3.7 million has been awarded by the Jeffrey Modell Foundation (JMF) for research into genetic immunodeficiency diseases known as Primary Immunodeficiency. Research programs focus on translational research and support of underserved regions with healthcare disparities, with projects currently being conducted in 32 countries led by 45 leading investigators.

New SPIRIT® Software Will Save $42 Billion in Healthcare Costs with Early Detection of Primary Immunodeficiency

JMF is set to launch an updated version of their SPIRIT® Analyzer software which is capable of saving $42 billion in preventable healthcare costs. After conducting a multi-year study, this upgraded and highly advanced screening tool will be introduced to major healthcare organizations and hospital networks.

Understanding the immune system offers remarkable opportunities for conquering diseases

For more than 30 years the Jeffrey Modell Foundation (JMF) has focused its efforts on the immune system because it holds the key to conquering many diseases that have plagued humankind. Millions of people around the world die needlessly from conditions that could be cured or prevented if the immune system functioned normally. The failure of the immune system to function properly contributes to two-thirds of the deaths of all Americans who die from infections each year. “Simply put, harnessing the power of the immune system represents one of the single greatest disease-fighting, and life-saving strategies that biomedical science has to offer. The best medicine lies within us!” exclaims Fred Modell, Co-Founder of JMF.

Jeffrey Modell Centers Network Sustains Vast Global Expansion

In light of the need for greater physician education and public awareness for Primary Immunodeficiency (PI), the Jeffrey Modell Research & Diagnostic Centers continue to open in cities and countries around the world.

Jeffrey Modell Foundation Celebrates Awareness Week by Highlighting Wishes & Dreams

In celebration of World Primary Immunodeficiency Week (WPIW), the Jeffrey Modell Foundation (JMF) has created a new virtual awareness initiative by attaching “wishes & dreams” to their annual balloon launch. Entitled worldPIwish, short animated films will be shared on JMF’s social platforms daily, with the Foundation spotlighting and highlighting different groups of people who are important to the Primary Immunodeficiency community. The new campaign launches Sunday, April 22nd.

Jeffrey Modell Centers Network Continues To Reach New Heights with Vast Global Expansion

There is an overwhelming and fundamental need for greater physician education and public awareness for Primary Immunodeficiency. In response, the Jeffrey Modell Foundation's (JMF) pledge to help affirm an absolute commitment to clinical and basic research in order to better understand and treat this condition, has materialized in the opening of 11 new Diagnostic and Research Centers and Networks across five continents; Africa, Australia, Asia, Europe, and North America.

Virtual Balloon Launch Goes Viral Reaching 9 Million People

"We decided to create a Virtual Balloon Launch. We took a chance; hoping people would see the video. We would have been thrilled to reach 10,000 viewers. But this initiative went "viral" almost immediately, quickly reaching more than 1 million a day and still going strong." -Fred Modell, JMF Co-Founder

One Balloon, One Life Saved… Raising Awareness for Primary Immunodeficiency

"Let's raise the balloons together, as one strong voice to affirm our dedication, passion, and commitment to our mission… to raise awareness, improve diagnosis, and advocate for equal access to treatment of PI worldwide. One balloon… one life saved. All we're asking is for people to share and help create awareness" said Vicki Modell, Co-Founder.

Jeffrey Modell Foundation Fulfills Commitment to Screen Every Newborn Baby For "Bubble Boy" Disease

Jeffrey Modell Foundation Launches New PSA Campaign Creating Greater Awareness of Primary Immunodeficiency

Jeffrey Modell Foundation Launches First CHILDREN!® Project

Study Reveals $40 Billion in Potential Savings in Healthcare Costs

Couple Extends Multi-Million Dollar Commitment to Screen Every Newborn Baby For "Bubble Boy" Disease

Jeffrey Modell Foundation Awards $1 Million for Translational Research

Too Sick to Dream?: Foundation Gives Children a Chance to Reach for Their Dreams

Global Foundation Appoints Executive Director

David W. Levinson “Sells Out” American Museum of Natural History at Jeffrey Modell Foundation 25th Anniversary Gala!

Angel Flight Northeast Partners with Jeffrey Modell Foundation, National Campaign Launched

Positive Changes for Primary Immunodeficiency Patients in Latin America

Couple Makes Multi-Million Dollar Commitment to Screen Every Newborn Baby for “Bubble Boy” Disease

Foundation Challenges African Physicians from 17 Countries to Implement Regional “Call to Action”

Jeffrey Modell Foundation Joins with 20 Countries to Launch World Primary Immunodeficiency Week

Jeffrey Modell Foundation Plans Historic Middle East Meeting

Jeffrey Modell Foundation Hosts Middle East Summit

Bill & Melinda Gates Foundation and Jeffrey Modell Foundation Announce Collaboration to Eradicate Polio Worldwide

Foundation Joins with 32 Countries to Launch World Primary Immunodeficiency Week

Latest Victims of Sequestration are Newborns! JMF Fights for SCID Babies

Jeffrey Modell Foundation Hosts First Global Summit in Berlin

“Berlin Declaration” Mandates Newborn Screening Globally

Global Polio Study Begins

“He’s a Kid” is not a Diagnosis, Could it be Primary Immunodeficiency?

Why Newborn Screening has Economic Benefits

Newborn Screening

newborns.svgEarly diagnosis saves lives! We are dedicated to continuing our journey to screen every newborn for Severe Combined Immunodeficiency (SCID), and T-cell Lymphopenia around the world.


Currently Conducting
Population Screening            

Conducting Screening Pilot Programs
and/or Screening in Select Areas

Africa

 

Asia

https://downloads.info4pi.org/images/flag-of-Singapore-resize-204x120-601ae11e5c2db-original Singapore

https://downloads.info4pi.org/images/flag-of-Taiwan-resize-204x120-601ae18ed8f16-original Taiwan

 https://downloads.info4pi.org/images/China-flag-resize-204x120-60b693604d071-original China

https://downloads.info4pi.org/images/flag-of-Japan-resize-204x120-601ae1c7e9329-original Japan

https://downloads.info4pi.org/images/South-Korea-flag-resize-204x120-60b6950c2b4a4-original South Korea

https://downloads.info4pi.org/images/Vietnam-flag-resize-204x120-60b695869dc2f-original Vietnam

Europe

https://downloads.info4pi.org/images/Austria-Flag-resize-820x553-62753574d4edd-original Austria

https://downloads.info4pi.org/images/Belgium-Flag-resize-204x120-616492ae400fb-original.png Belgium (Begins 2023)

https://downloads.info4pi.org/images/flag-of-Denmark-resize-204x120-601ae21613e2f-original Denmark

https://downloads.info4pi.org/images/flag-of-Germany-resize-204x120-601ae24ca7f72-original Germany

https://downloads.info4pi.org/images/flag-of-Iceland-resize-204x120-601ae284113a8-original Iceland

https://downloads.info4pi.org/images/flag-of-Netherlands-resize-204x120-601ae2ab5cbf7-original Netherlands

https://downloads.info4pi.org/images/flag-of-Norway-resize-204x120-601ae2cd10d5e-original Norway

https://downloads.info4pi.org/images/flag-of-Sweden-resize-204x120-601ae2ee1d3f5-original Sweden

https://downloads.info4pi.org/images/flag-of-Switzerland-resize-204x120-601ae30bd6f23-original Switzerland

https://downloads.info4pi.org/images/Flag_of_the_Czech_Republic-svg-resize-900x600-631a1497a27e8-original Czech Republic

https://downloads.info4pi.org/images/flag-of-France-resize-204x120-601ae333c9427-original France

https://downloads.info4pi.org/images/flag-of-Finland-resize-204x120-601ae378840c3-original Finland (2/5 Hospital Districts)

https://downloads.info4pi.org/images/Ireland-Flag-resize-204x120-60b6965ca31c3-original Ireland

https://downloads.info4pi.org/images/flag-of-Italy-resize-204x120-601ae3999de86-original Italy (Tuscany)

https://downloads.info4pi.org/images/flag-of-Poland-resize-204x120-601ae3ce5c065-original Poland

https://downloads.info4pi.org/images/flag-of-Spain-resize-204x120-601ae3f4c6783-original Spain (Catalonia)

https://downloads.info4pi.org/images/Flag_of_Ukraine-svg-resize-800x533-631a15a105633-original Ukraine

https://downloads.info4pi.org/images/UK-Flag-resize-204x120-61a68a1e48d9a-original United Kingdom (Birmingham, GOSH London, Manchester, Newcastle, Sheffield, SE Thames)

https://downloads.info4pi.org/images/flag-of-Turkey-resize-204x120-601ae4119b57c-original Turkey

Latin America

 https://downloads.info4pi.org/images/flag-of-Brazil-resize-204x120-601ae43461318-original Brazil

 

Middle East

https://downloads.info4pi.org/images/flag-of-Israel-resize-204x120-601ae455d971c-original Israel

https://downloads.info4pi.org/images/flag-of-Lebanon-resize-204x120-601ae475719f7-original Lebanon

https://downloads.info4pi.org/images/sa-flag-resize-900x600-631a15a24093c-original Saudi Arabia

North America                     

https://downloads.info4pi.org/images/flag-of-United-States-of-America-resize-204x120-601ae4b5cd2db-original United States

https://downloads.info4pi.org/images/flag-of-Canada-resize-204x120-601ae51640a89-original Canada (Alberta, The Maritimes, Manitoba, NW Territories, Ontario)

Oceania

https://downloads.info4pi.org/images/flag-of-New-Zealand-resize-204x120-601ae52397230-original New Zealand                                          

Calls to Action

megaphone.svgEarly diagnosis can often mean a world of difference because it translates to early intervention. The Jeffrey Modell Foundation empowers our community with “Calls to Action”. Together, with our global partners, we are strong advocates committed to enhancing earliest possible diagnosis with access to equal and appropriate treatments for all patients around the world. Our efforts have brought us to where we are today. Please see the results below.

2020 Global Resolution

Over 300 international expert immunologists pledged to continue encouragement and support of physician education and public awareness relating to all Primary Immunodeficiencies to physicians, health officials and the public.

Signees renewed their support improved access to care, treatment, and diagnostics for patients, including the implementation of newborn screening for Severe Combined Immunodeficiency (SCID) and related T cell Lymphopenia.

Additionally, the 2020 Global Resolution calls for the development and advancement of preventative and personalized medicine and for the application of new technology for diagnosis and clinical care, including genetic sequencing, identifying the genes causing disease and developing treatments for patients with Primary Immunodeficiencies.

View the full 2020 Global Resolution

A Call to Action... A Global Resolution Jeffrey Modell Centers Summit – June 8-12, 2016

The Jeffrey Modell Foundation celebrated its 30th Birthday in June with a four-day Global Summit in Los Angeles, California. More than 275 world-renowned Immunologists and scientists from 52 countries gathered to share their research, as well as, their expertise in the diagnosis, treatment, and management of Primary Immunodeficiencies.

At the conclusion of the Summit, a Call to Action… a Global Resolution, was drafted and has been signed by hundreds of physician experts.

View the full Global Resolution

The Berlin Declaration Jeffrey Modell Centers Summit – July 17-20, 2013

Immunologists from all Jeffrey Modell Diagnostic and Research Centers were brought together by the Jeffrey Modell Foundation for a three-day Global Summit in Berlin, Germany. The physician-experts represent the world’s leadership and are authorities in the diagnosis, treatment, and management of Primary Immunodeficiencies. At the conclusion of the Symposium, the physicians agreed on a set of guiding principles.

View the full Berlin Declaration

Primary Immunodeficiencies in Latin America A Call to Action

The Latin America Primary Immunodeficiency Community including the Latin American Society for Immunodeficiencies (LASID), the Jeffrey Modell Foundation (JMF), and the International Patient Organization for Primary Immunodeficiencies (IPOPI) invite Latin American governments to endorse and sign the Primary Immunodeficiencies Call to Action. We call on Latin American governments to take heed of these devastating and under-diagnosed diseases by developing national strategies that address Primary Immunodeficiency.

View the full Latin America Call to Action

Africa Call to Action Driving Diagnosis for Optimal Care

Who We Are

We are representing the Primary Immunodeficiency Community in Africa and worldwide. The Jeffrey Modell Foundation (JMF – www.info4pi.org), a global organization dedicated to early and precise diagnosis, meaningful treatments, and ultimately, cures of Primary Immunodeficiencies together with the African Society for Immunodeficiencies (ASID – http://www.asid.ma), a society that has placed Africa solidly in the concert of nations that understand and promote the knowledge and treatment of Primary Immunodeficiencies.

View the full Africa Call to Action

SPIRIT® Analyzer Tool

SPIRITLogowithKids-resize-250x133-533edd6fd778c-original.pngSoftware for Primary Immunodeficiency Recognition, Intervention, and Tracking

The SPIRIT® Analyzer Software is a screening tool used by healthcare organizations, hospitals, and physician group practices across the country for the identification of undiagnosed patients with Primary Immunodeficiency.

Read the full manuscript, Calculation of a Primary Immunodeficiency “Risk Vital Sign” via Population-Wide Analysis of Claims Data to Aid in Clinical Decision Support, to get better acquainted with the power of SPIRIT®!

The reason for SPIRIT®

  • Disease Prevention
  • Electronic Recognition
  • Reduction of Healthcare Costs
  • Improved Quality of Life for Patients

To download the SPIRIT® Analyzer Software, please send us an email at spirit@jmfworld.org

In your email, please include the following information:

  • First and last name
  • Company or institution
  • Title
  • Email address
  • Mailing address
  • Phone number
  • How you found out about SPIRIT®

Once we receive your email, we’ll send you a Memorandum of Understanding, confirming the guidelines of the SPIRIT® Analyzer Software.

Questions about SPIRIT®?

Download the FAQs

SPIRIT® is a Registered Trademark issued by the United States Patent and Trademark Office to the Jeffrey Modell Foundation. The SPIRIT® Software is provided as a public service. Any unauthorized usage, duplication, modification, or transfer of this material without expressed written consent of the Jeffrey Modell Foundation, is strictly prohibited.

Have a seat! Thank you for coming to our neighborhood meeting! Today’s topics of discussion are newborn screening, awareness, advocacy efforts, and Calls to Action.
  • Have a seat! Thank you for coming to our neighborhood meeting! Today’s topics of discussion are newborn screening, awareness, advocacy efforts, and Calls to Action.
  • Let’s start with our “Berlin Declaration” JMF received over 200 signatures from physicians in support of implementation of screening for Severe Combined Immunodeficiency around the world!
  • Before we continue, it is time to read our informative press releases and other important documents so you’re ready to join the discussion!
  • Today’s meeting is adjourned but I am still here to answer any of your questions.