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Press Releases

fliers.svgIt’s always busy in the Global Village, and that’s why we want to share all the important activities and topics at the Town Hall. This is where you can find all of our press releases on global awareness, physician education, research, patient support, advocacy, and more.

Jeffrey Modell Foundation Awards $3.7 Million For Global Primary Immunodeficiency Research

To date, $3.7 million has been awarded by the Jeffrey Modell Foundation (JMF) for research into genetic immunodeficiency diseases known as Primary Immunodeficiency. Research programs focus on translational research and support of underserved regions with healthcare disparities, with projects currently being conducted in 32 countries led by 45 leading investigators.

New SPIRIT® Software Will Save $42 Billion in Healthcare Costs with Early Detection of Primary Immunodeficiency

JMF is set to launch an updated version of their SPIRIT® Analyzer software which is capable of saving $42 billion in preventable healthcare costs. After conducting a multi-year study, this upgraded and highly advanced screening tool will be introduced to major healthcare organizations and hospital networks.

Understanding the immune system offers remarkable opportunities for conquering diseases

For more than 30 years the Jeffrey Modell Foundation (JMF) has focused its efforts on the immune system because it holds the key to conquering many diseases that have plagued humankind. Millions of people around the world die needlessly from conditions that could be cured or prevented if the immune system functioned normally. The failure of the immune system to function properly contributes to two-thirds of the deaths of all Americans who die from infections each year. “Simply put, harnessing the power of the immune system represents one of the single greatest disease-fighting, and life-saving strategies that biomedical science has to offer. The best medicine lies within us!” exclaims Fred Modell, Co-Founder of JMF.

Jeffrey Modell Centers Network Sustains Vast Global Expansion

In light of the need for greater physician education and public awareness for Primary Immunodeficiency (PI), the Jeffrey Modell Research & Diagnostic Centers continue to open in cities and countries around the world.

Jeffrey Modell Foundation Celebrates Awareness Week by Highlighting Wishes & Dreams

In celebration of World Primary Immunodeficiency Week (WPIW), the Jeffrey Modell Foundation (JMF) has created a new virtual awareness initiative by attaching “wishes & dreams” to their annual balloon launch. Entitled worldPIwish, short animated films will be shared on JMF’s social platforms daily, with the Foundation spotlighting and highlighting different groups of people who are important to the Primary Immunodeficiency community. The new campaign launches Sunday, April 22nd.

Jeffrey Modell Centers Network Continues To Reach New Heights with Vast Global Expansion

There is an overwhelming and fundamental need for greater physician education and public awareness for Primary Immunodeficiency. In response, the Jeffrey Modell Foundation's (JMF) pledge to help affirm an absolute commitment to clinical and basic research in order to better understand and treat this condition, has materialized in the opening of 11 new Diagnostic and Research Centers and Networks across five continents; Africa, Australia, Asia, Europe, and North America.

Virtual Balloon Launch Goes Viral Reaching 9 Million People

"We decided to create a Virtual Balloon Launch. We took a chance; hoping people would see the video. We would have been thrilled to reach 10,000 viewers. But this initiative went "viral" almost immediately, quickly reaching more than 1 million a day and still going strong." -Fred Modell, JMF Co-Founder

One Balloon, One Life Saved… Raising Awareness for Primary Immunodeficiency

"Let's raise the balloons together, as one strong voice to affirm our dedication, passion, and commitment to our mission… to raise awareness, improve diagnosis, and advocate for equal access to treatment of PI worldwide. One balloon… one life saved. All we're asking is for people to share and help create awareness" said Vicki Modell, Co-Founder.

Jeffrey Modell Foundation Fulfills Commitment to Screen Every Newborn Baby For "Bubble Boy" Disease

Jeffrey Modell Foundation Launches New PSA Campaign Creating Greater Awareness of Primary Immunodeficiency

Newborn Screening

Our founders, Vicki and Fred Modell, spearheaded efforts to require newborn screening for Severe Combined Immunodeficiency (SCID) in the United States for several years in Washington D.C. In 2018, newborn screening for SCID was finally implemented in all 50 states, Washington D.C., Puerto Rico, and the Navajo Nation. We continue to advocate for SCID screening worldwide because early diagnosis saves lives! See if your country participates in newborn screening for SCID below. 

Don’t see your country listed? Send a note to your representatives using our template letter.

Conducting population
screening
Conducting screening
in select areas
Current or past
screening pilot programs
Africa
Asia
  • Singapore
  • Taiwan
  • China
  • Japan
  • South Korea
  • Vietnam
Europe
  • Austria
  • Belgium (Begins 2023)
  • Denmark
  • Germany
  • Iceland
  • Ireland (ADA SCID only)
  • Netherlands
  • Norway
  • Russia
  • Sweden
  • Switzerland
  • Finland (2/3 hospital districts)
  • Italy (Tuscany)
  • Spain (Catalonia)
  • United Kingdom (Birmingham, GOSH London, Manchester, Newcastle, Sheffield, SE Thames)
  • Czech Republic
  • France
  • Poland
  • Slovakia
  • Turkey
  • Ukraine
Latin
America
  • Brazil
Middle
East
  • Israel
  • Lebanon
  • Saudi Arabia
North
America
  • United States
  • Canada (Alberta, British Columbia, The Maritimes, Manitoba, NW Territories, Ontario)
Oceania
  • New Zealand
  • Australia (New South Wales, Australian Capital Territory)

*As of January 2023

This Year’s Global Movement

WPIW-logo-horizontal-web-2.jpgThe World Primary Immunodeficiency Week 2023 campaign has just been announced! The 2023 campaign theme will be “Data Saves Lives.” Check back on our website for more details in the coming months. 

The Jeffrey Modell Foundation looks forward to once again collaborating with expert physicians, patient groups, and other individuals around the world during this global movement to raise awareness, create dialogue, and strengthen the bonds of our community.

WPIW 2022 instagramPost.png

The World PI Week 2022 campaign report is now out! You can read the 2022 WPIW outcomes report here. The outcomes press release is available here.

In 2022, World PI Week focused on the importance of access to healthcare. LIVES CAN BE SAVED. Access to healthcare is a basic human right. People living with PI worldwide depend on it. Each of them is entitled to the correct diagnosis, quality treatment and care. 

Find the report here for an overview of the many activities that have been organized worldwide to show support to improve the quality of life of patients.

If you are aware of additional initiatives, please get in touch with us at: info@worldpiweek.org so these can be captured in the report as well.

Once again, thank you to everyone who joined the Week and contributed to its success!

Donate Plasma

It takes 130 plasma donations to treat just ONE patient living with a PI for a year. There is currently an increased need for plasma, and you can be the solution! Plasma can’t be made artificially in a lab—it can only be gathered from healthy donors. Will you sign up to give the gift of life?

Find a plasma donation center near you.

At the Town Hall, learn about our newborn screening efforts, World PI Week, and how to donate plasma.
  • At the Town Hall, learn about our newborn screening efforts, World PI Week, and how to donate plasma.