Need help finding something?

Contact us

If you have any questions or comments for us, please fill out the form below. We’re happy to help as best we can.

Sign up for our Newsletter

Please sign up to our newsletter by completing the form below.

KIDS DAY

The Jeffrey Modell Foundation is proud to organize the KIDS DAY program each year for members of our Jeffrey Modell Centers Network (JMCN). KIDS DAY offers patients, their families, doctors and nurses an all-expense paid day of community, connection, and most of all, fun! We want to ensure that no person living with PI has to be alone, and KIDS DAY provides an informal setting to share experiences, stories and form lasting connections.

The 2023 KIDS DAY Extravaganza will be kicking off soon! Past KIDS DAY events have included trips to the zoo or aquarium, baseball games, virtual tours of museums, movies, and more. We encourage groups to think of their own ideas for a fun day, either in-person or virtually.

Ask your immunologist or nurse if they participate in KIDS DAY! No KIDS DAY near you? Ask your care team to contact us at info@jmfworld.org to organize a local event for your community to enjoy a day of fun in a safe setting.

  • Patient Organizations
  • Patient Organizations
  • WIN

Global Patient Organizations

The Jeffrey Modell Foundation is proud to share global patient organizations that provide support, knowledge, and community for patients and their families to learn and connect with each other. Many of these organizations have received our WIN grant to fund their ongoing efforts and activities.

 

Country:
Argentina
Name:
AAPIDP–Asociacion de Ayuda al Paciente con Immunodeficiencia Primaria
Link:
aapidp.com.ar
Email:
Country:
Australia
Name:
AusPIPs
Link:
auspips.org.au
Email:
Country:
Australia
Name:
IDFA–Immune Deficiency Foundation Australia
Link:
idfa.org.au
Email:
Country:
Austria
Name:
ÖSPID–Österreichische Selbsthilfegruppe primärer Immum Defekte
Link:
oespid.at
Email:
Country:
Belarus
Name:
Save the Immunity
Link:
save-immunity.by
Email:
Country:
Bosnia and Herzegovina
Name:
POPID - Udruženje za podršku osobama sa Primarnom Imunodeficijencijom – Udruženje
Link:
pospid.org.rs/sr
Email:
Country:
Brazil
Name:
ANPIC–Associação Nacional dos Portadores de Imunodeficiência Primária Congênita
Link:
anpic.org.br
Email:
Country:
Brazil
Name:
BRAGID - Brazilian Group for Immunodeficiency
Link:
imunopediatria.org.br
Email:
Country:
Brazil
Name:
ELPIB - Eu Luto Pela Imuno Brasil
Link:
eulutopelaimunobrasil.org.br
Email:
Country:
Bulgaria
Name:
Association of People with Congenital Immunodeficiency
Email:
Country:
Canada
Name:
Immunity Canada
Link:
immunitycanada.org
Email:
Country:
Canada
Name:
Immunodeficiency Canada / Immunodéficience Canada
Link:
immunodeficiency.ca
Email:
Country:
Canada
Name:
Immunodeficiency Canada / Immunodéficience Canada
Link:
immunodeficiency.ca
Email:
Country:
Colombia
Name:
Fundacion Diana Garcia de Olarte
Link:
fecoer.org/fundacion-diana-garcia-de-olarte-fip
Email:
Country:
Cyprus
Name:
Cyprus PI Association and Friends
Email:
Country:
Cyprus
Name:
Group of People with Congenital Immune Deficiency and Friends
Link:
facebook.com/primaryimmunodeficiencycyprus
Country:
Denmark
Name:
Immun Defekt Foreningen
Link:
idf.dk
Email:
Country:
Ecuador
Name:
Fundación PIDE (Fundación de pacientes con Inmunodeficiencias Primarias - Ecuador)
Link:
facebook.com/FundacionPIDE.ec/about
Email:
Country:
Egypt
Name:
Society of Nada for Egyptian Patients with Primary Immunodeficiency
Link:
facebook.com/Egyptian-Association-Nada-For-Patients-With-Primary-Immunodeficiency-885983474751522
Email:
Country:
Estonia
Name:
Immuunpuudulikkuse Selts
Link:
facebook.com/immuunpuudulikkus
Email:
Country:
Finland
Name:
Immunipuutospotilaiden Yhdistys RY
Link:
immuunipuutospotilaidenyhdistys.fi
Email:
Country:
France
Name:
IRIS–Immuno-Déficience Primitive Recherche Information Soutien
Link:
associationiris.org
Email:
Country:
Germany
Name:
DSAI–Deutsche Selbsthilfe Angeborene Immundefekte e. V.
Link:
dsai.de
Email:
Country:
Greece
Name:
APMONIA–Association of Greek Friends for Pediatric Immunology - Primary Immunodeficiency
Link:
paed-anosia.gr
Email:
Country:
Greece
Name:
Galinos Immune Deficiency Association of Greece
Link:
galinossilogos.wixsite.com/galinos
Email:
Country:
Hungary
Name:
HOPI–Hungarian Patients' Group for Immunodeficiency
Email:
Country:
Iceland
Name:
Lind–Icelandic Organization
Email:
Country:
India
Name:
IPSPI–Indian Patients Society for Primary Immunodeficiency
Link:
ipspiindia.org
Email:
Country:
Ireland
Name:
IPIA–Primary Immunodeficiency Association of Ireland
Link:
ipia.info
Email:
Country:
Israel
Name:
IFID–Israel Foundation for Inherited Immune Disorders
Email:
Country:
Israel
Name:
The Israeli Wiskott Aldrich Association
Link:
facebook.com/was.org.il
Email:
Country:
Italy
Name:
AIP–Associazione Immunodeficienze Primitive
Link:
aip-it.org
Email:
Country:
Japan
Name:
Tsubasa No Kai
Link:
npo-pidtsubasa.org
Email:
Country:
Korea, South
Name:
Primary Immunodeficiency Families Association (일차면역결핍증환우회- Korea)
Link:
pidfan.ba.ro
Email:
Country:
Lebanon
Name:
iFight PID Fund at AUBMC
Link:
facebook.com/ifightpidfund
Email:
Country:
Macedonia
Name:
Parent Organization of Children with Primary Immunodeficiency
Link:
primaryimmune.org/infants-and-children
Email:
Country:
Malaysia
Name:
Malaysia Patients Organization for Primary Immunodeficiencies
Link:
mypopi.org
Email:
Country:
Mexico
Name:
ALAS (Iniciativa ALAS) - Alianza de Asociaciones de Inmunodeficiencias Primarias
Link:
iniciativaalas.org
Email:
Country:
Mexico
Name:
Fundación Mexicana Para Niñas Y Niños con Inmunodeficiencias Primarias A.C. (FUMENI)
Link:
fumeni.org.mx
Email:
Country:
Mexico
Name:
Nemo Foundation
Email:
Country:
Netherlands
Name:
Stichting voor AfweerStoornissen
Link:
stichtingvoorafweerstoornissen.nl
Country:
New Zealand
Name:
IDFNZ–Immune Deficiencies Foundation of New Zealand
Link:
idfnz.org.nz
Email:
Country:
Nicaragua
Name:
ANIPIDP (Asociacion Nicaraguense de Pacientes Inmunodeficiencias Primarias)
Link:
facebook.com/anipidp.2019
Email:
Country:
Norway
Name:
Norsk Immunsviktforening
Link:
immunsvikt.no
Country:
Peru
Name:
ASPAIP–Asociacion Peruana de Ayuda al Inmunodeficiente Primario
Link:
datosperu.org
Email:
Country:
Peru
Name:
Saving Children with Agammaglobulinemia (Salvando A Los Niños Con Agammaglobulinemia)
Link:
savingagammaglobulinemiapatients.org
Email:
Country:
Philippines
Name:
PhilPOPI - Philippine Patient Organizations for Primary Immunodeficiencies
Link:
facebook.com/philpopi.org? mibextid=LQQJ4d
Email:
Country:
Poland
Name:
Immunoprotect–Association for Patients with Primary Immunodeficiency
Link:
immunoprotect.pl
Email:
Country:
Portugal
Name:
APDIP–Associacao Protuguesa de Doentes com Imunodeficiencia Primaria
Link:
apdip.pt
Email:
Country:
Portugal
Name:
IPOPI–International Patient Organization for Primary Immunodeficiencies
Link:
ipopi.org
Email:
Country:
Romania
Name:
ARPID–Romanian Association for Patients with Primary Immunodeficiency
Link:
arpid.ro
Email:
Country:
Russia
Name:
Sunflower–The Association for Primary Immunodeficient Patients
Link:
fondpodsolnuh.ru
Email:
Country:
Serbia and Montenegro
Name:
POsPID–Support of Persons with Primary Immunodeficiency
Link:
pospid.org.rs/sr
Country:
Slovakia
Name:
Združenie pacientov s primárnou imunodeficienciou - Slovak Association for PI patients
Link:
imunodeficit.sk
Email:
Country:
Slovenia
Name:
Društvo za pomoč otrokom z imunskimi boleznimi - Slovenian society for children with immune disorders
Link:
imuno.si
Email:
Country:
Slovenia
Name:
Društvo za pomoč otrokom z imunskimi boleznimi - Slovenian Society for Children with Immune Disorders
Link:
imuno.si
Email:
Country:
South Africa
Name:
PINSA–Primary Immunodeficiency Network of South Africa
Link:
pinsa.org.za
Email:
Country:
Spain
Name:
ABADIP–Associació Balear de Dèficits Immunitaris
Link:
abadip.com
Email:
Country:
Spain
Name:
ACADIP–Associació Catalana de Déficits Immunitaris Primaris
Link:
acadip.org
Email:
Country:
Spain
Name:
AEDIP–Asociación Española de Déficits Inmunitarios Primarios
Link:
aedip.com
Email:
Country:
Spain
Name:
Barcelona PID Foundation
Link:
pidfoundationbcn.org
Email:
Country:
Sudan
Name:
SOPPI–Sudanese Organization for Patients with Primary Immunodeficiency
Link:
facebook.com/Sudanese-Organization-for-Patients-with-Primary-Immunodeficiency-Soppi-331579087487148
Country:
Sweden
Name:
PIO–Primaer Immunbrist Organisationen
Link:
pio.nu
Email:
Country:
Switzerland
Name:
SVAI–Schweizerische Vereinigung fur Angeborene Immundefekte
Link:
svai.ch
Email:
Country:
Tunisia
Name:
ATun-DIPs - Amélioration de la prise en charge des enfants Tunisiens atteints de Déficits Immunitaires Primitifs
Link:
atundips.tn
Email:
Country:
Turkey
Name:
İmmün Yetersizlik - Türk İmmünoloji Derneği
Link:
turkimmunoloji.org
Email:
Country:
United Kingdom
Name:
CGD Society–Chronic Granulomatous Disease Society
Link:
cgdsociety.org
Email:
Country:
United Kingdom
Name:
PID UK–Primary Immunodeficiency UK
Link:
immunodeficiencyuk.org
Email:
Country:
United Kingdom
Name:
The XLP Research Trust
Link:
xlpresearchtrust.org
Country:
United States
Name:
CIPO–Canadian Immunodeficiencies Patient Organization
Link:
cipo.ca
Email:
Country:
United States
Name:
Hereditary Angioedema Association
Link:
haea.org
Country:
United States
Name:
Hereditary Angioedema Association
Link:
haea.org
Country:
United States
Name:
Hyper IgM Foundation
Link:
hyperigm.org
Email:
Country:
United States
Name:
IDF–Immune Deficiency Foundation
Link:
primaryimmune.org
Email:
Country:
United States
Name:
NEPIN–New England Primary Immunodeficiency Network
Link:
nepin.org
Email:
Country:
United States
Name:
SCID Angels for Life Foundation
Link:
SCIDAngelsForLife.org
Email:
Country:
United States
Name:
The CGD Association of America
Link:
cgdaa.org
Email:
Country:
United States
Name:
Wiskott Aldrich Syndrome Foundation
Link:
wiskott.org
Email:
Country:
United States
Name:
XLA Life
Link:
xla.life
Email:
Country:
Uruguay
Name:
AUPIDP–Asociacion Uruguaya de Pacientes con Immunodeficiencias Primarias
Link:
facebook.com/aupidp.inmunodeficienciasprimarias
Email:
Country:
Venezuela
Name:
ACIDP-Inmunodeficiencias Primarias Venezuela Asociación Civil
Link:
inmunodeficienciasprimariasvenezuela.blogspot.com
Country:
Vietnam
Name:
VIET PIPS
Link:
facebook.com/Suygiammiendichbamsinh
Email:

World Immunodeficiency Network

win_logo-resize-299x60-536c0d0abb082-original.gifThe World Immunodeficiency Network (WIN) grant was created to support the outstanding efforts of global patient organizations that work tirelessly to unite and strengthen the PI community. WIN grants are awarded to organizations that provide meaningful support, encouragement, and assistance in developing awareness activities, educational materials and conferences, family days, advocacy efforts, and more to improve quality of life.

To date, JMF has awarded WIN grants to patient organizations in over 44 countries. To apply, download the application. Note: the maximum award amount is $5,000.

Questions? Please contact us at win@jmfworld.org to find out more information.

  • Activities for Kids
  • Activities for Kids
  • Spy the 10 Warning Signs of PI
  • Word JAM
  • Immune System Games
  • Coloring the Global PI Village

Activities for Kids

We created various activities for kids to unwind, get creative, and have fun! Click through each section to explore each activity, including coloring, word searches and scrambles, and other unique immune system games. We hope you enjoy and learn something new!

Spy the 10 Warning Signs of PI

Search and find the 10 Warning Signs of Primary Immunodeficiency (PI). Hint: Click below and match the colors in the chart for each item.

Final-Photo-for-JMF-School-Nurse-Bulletin-Board-Contest-1920x1080-resize-900x506-5ede6aa27ab1a-original.jpeg

WordJAM

Can you unscramble the Primary Immunodeficiency related word “JAMS” below?

  • Miduncineiemfocy 
  • Iviscacoantn 
  • Mgyounmoil 
  • Cingrnsee 
  • Pouinanme 
  • Aeostngph 
  • Oeiintdsab 
  • Teieimascp 
  • Amnligoublagm 

Click to download the answer key to our word JAM. 

Search: The objective of these puzzles is to find all the hidden words. The words may be placed horizontally, vertically, or diagonally.

PRIMARY IMMUNODEFICIENCY - Search

primary-immunodeficiency_jam-resize-833x645-55089430e0f4c-original.jpg

PI VOCABULARY - Search

pi-vocabulary_jam-resize-839x614-550894099bac1-original.jpg

NEWBORN SCREENING - Search

newborn-screening_jam-resize-900x602-57a3811a7e9fd-original.jpg

IMMUNE SYSTEM - Search

immune-system-resize-834x641-5508900c0224f-original.jpg

GLOBAL PI VILLAGE - Search

global-pi-village_jam-resize-832x602-5508941c196b6-original.jpg

PSA CAMPAIGN - Search

psa-campaign_jam-resize-847x615-56bb5fa1bd1f6-original.jpg

JMCN US LOCATIONS - Search

us_jam-resize-900x622-55089424dba20-original.jpg

JMCN INTERNATIONAL LOCATIONS - Search

international_jam-resize-900x634-5508942b2e362-original.jpg

SCIENCE - Search

science_jam-resize-823x633-550893fd509cf-original.jpg

FOUNDATION - Search

foundation_jam-resize-856x594-550893f684260-original.jpg

WORLD PI WEEK - Search

wpiw_jam-resize-834x619-550894033cdd0-original.jpg

Immune System Games

Test your knowledge about the Immune System with the games below! Why not try a scavenger hunt across our website next? Share with your friends and invite them to join in on the fun!

Coloring the Global PI Village

Choose a design from around the Global PI Village and make it your own! Download a coloring page to get started. 

Jeffrey Modell Foundation Global PI Village™

Headquarters

Information Booth

Library

Medical Academy

WJMF

Town Hall

Internet Cafe

Village Park

Airport

At the Village Park, you’ll find global patient organizations, activities for kids, information about our annual KIDS DAY event, and our WIN grant that supports patient organizations.