World Immunodeficiency Network
WIN is a program that provides funding to regional and national Patient Organizations worldwide, to unite and strengthen the voices of the Primary Immunodeficiency community.
WIN works in harmony to provide meaningful support, encouragement, and assistance in developing awareness activities, educational materials, dissemination of information, medical education conferences, website development, family days, patient support, and advocacy for access to care and appropriate treatments.
Download the WIN grant application
Global Patient Organizations
There are Primary Immunodeficiency Patients Organizations all around the world for you to join. They provide support, knowledge, and a social environment for patients and families to learn from each other’s journeys and experiences.
- Contry:
- Argentina
- Name:
- AAPIDP–Asociacion de Ayuda al Paciente con Immunodeficiencia Primaria
- Link:
- aapidp.com.ar
- Email:
- info@aapidp.com.ar
- Contry:
- Australia
- Name:
- IDFA–Immune Deficiency Foundation Australia
- Link:
- idfa.org.au
- Email:
- info@idfa.org.au
- Contry:
- Austria
- Name:
- ÖSPID–Österreichische Selbsthilfegruppe primärer Immum Defekte
- Link:
- oespid.at
- Email:
- modl.karin@gmx.at
- Contry:
- Belarus
- Name:
- Save the Immunity
- Link:
- save-immunity.by
- Email:
- Andron116@yandex.ru
- Contry:
- Bosnia and Herzegovina
- Name:
- POsPID - Podrška Osobama sa Primarnim Imunodeficitima
- Link:
- pospid.org.rs/sr
- Email:
- dzenita.subasic@sos-ds.ba
- Contry:
- Brazil
- Name:
- ANPIC–Associação Nacional dos Portadores de Imunodeficiência Primária Congênita
- Link:
- anpic.org.br
- Email:
- anpic@anpic.org.br
- Contry:
- Brazil
- Name:
- BRAGID - Brazilian Group for Immunodeficiency
- Link:
- imunopediatria.org.br
- Email:
- info@imunopediatria.org.br
- Contry:
- Bulgaria
- Name:
- Association of People with Congenital Immunodeficiency
- Email:
- stoil_lazarov@abv.bg
- Contry:
- Canada
- Name:
- Immunodeficiency Canada / Immunodéficience Canada
- Link:
- immunodeficiency.ca
- Email:
- contactus@immunodeficiency.ca
- Contry:
- Chile
- Name:
- PID Care Centre in China
- Link:
- ncbi.nlm.nih.gov/pmc/articles/PMC6829960
- Email:
- pidcare@163.com
- Contry:
- Colombia
- Name:
- Fundacion Diana Garcia de Olarte
- Link:
- fecoer.org/fundacion-diana-garcia-de-olarte-fip
- Email:
- fundacionfip@gmail.com
- Contry:
- Cyprus
- Name:
- Cyprus PI Association and Friends
- Email:
- Maria.g.charalambous@cyta.com.cy
- Contry:
- Cyprus
- Name:
- Group of People with Congenital Immune Deficiency and Friends
- Link:
- facebook.com/primaryimmunodeficiencycyprus
- Contry:
- Denmark
- Name:
- Immun Defekt Foreningen
- Link:
- idf.dk
- Email:
- Information@idf.dk
- Contry:
- Ecuador
- Name:
- Fundación PIDE (Fundación de pacientes con Inmunodeficiencias Primarias - Ecuador)
- Link:
- facebook.com/FundacionPIDE.ec/about
- Email:
- fundacionpide.ec@hotmail.com
- Contry:
- Egypt
- Name:
- Society of Nada for Egyptian Patients with Primary Immunodeficiency
- Link:
- facebook.com/Egyptian-Association-Nada-For-Patients-With-Primary-Immunodeficiency-885983474751522
- Email:
- shereenreda@med.asu.edu.eg
- Contry:
- Estonia
- Name:
- Estonian Patient Society for Primary Immunodeficiencies
- Link:
- primaryimmune.org/international-section/estonian-resources
- Email:
- juhanliiva@gmail.com
- Contry:
- Estonia
- Name:
- Immuunpuudulikkuse Selts
- Link:
- facebook.com/immuunpuudulikkus
- Email:
- immuunpuudulikkus@gmail.com
- Contry:
- Finland
- Name:
- Immunipuutospotilaiden Yhdistys RY
- Link:
- immuunipuutospotilaidenyhdistys.fi
- Email:
- puheenjohtaja@imppu.fi
- Contry:
- France
- Name:
- IRIS–Immuno-Déficience Primitive Recherche Information Soutien
- Link:
- associationiris.org
- Email:
- info@associationiris.org
- Contry:
- Germany
- Name:
- DSAI–Deutsche Selbsthilfe Angeborene Immundefekte e. V.
- Link:
- dsai.de
- Email:
- info@dsai.de
- Contry:
- Greece
- Name:
- APMONIA–Association of Greek Friends for Pediatric Immunology - Primary Immunodeficiency
- Link:
- paed-anosia.gr
- Email:
- manolakakisch@windowslive.com
- Contry:
- Greece
- Name:
- Galinos Immune Deficiency Association of Greece
- Link:
- galinossilogos.wixsite.com/galinos
- Email:
- galinos.silogos@gmail.com
- Contry:
- Hungary
- Name:
- HOPI–Hungarian Patients' Group for Immunodeficiency
- Email:
- hzsu86@gmail.com
- Contry:
- Iceland
- Name:
- Lind–Icelandic Organization
- Email:
- gmb@bhs.is
- Contry:
- India
- Name:
- IPSPI–Indian Patients Society for Primary Immunodeficiency
- Link:
- ipspiindia.org
- Email:
- rubbychawla@ipspiindia.org
- Contry:
- Ireland
- Name:
- IPIA–Primary Immunodeficiency Association of Ireland
- Link:
- ipia.info
- Email:
- ipiasecretary@gmail.com
- Contry:
- Israel
- Name:
- IFID–Israel Foundation for Inherited Immune Disorders
- Email:
- advgal@017.net.il
- Contry:
- Israel
- Name:
- The Israeli Wiskott Aldrich Association
- Link:
- facebook.com/was.org.il
- Email:
- office@was.org.il
- Contry:
- Italy
- Name:
- AIP–Associazione Immunodeficienze Primitive
- Link:
- aip-it.org
- Email:
- info@aip-it.org
- Contry:
- Japan
- Name:
- Tsubasa No Kai
- Link:
- npo-pidtsubasa.org
- Email:
- wingpost@npo-pidtsubasa.org
- Contry:
- Korea, South
- Name:
- Primary Immunodeficiency Families Association (일차면역결핍증환우회- Korea)
- Link:
- pidfan.ba.ro
- Email:
- pidsouthkorea@gmail.com
- Contry:
- Lebanon
- Name:
- iFight PID Fund at AUBMC
- Link:
- facebook.com/ifightpidfund
- Email:
- info@ifightpid.org
- Contry:
- Macedonia
- Name:
- Parent Organization of Children with Primary Immunodeficiency
- Link:
- primaryimmune.org/infants-and-children
- Email:
- kstavric@hotmail.com
- Contry:
- Malaysia
- Name:
- Malaysia Patients Organization for Primary Immunodeficiencies
- Link:
- mypopi.org
- Email:
- mypopi@yahoo.com.my
- Contry:
- Mexico
- Name:
- ALAS (Iniciativa ALAS) - Alianza de Asociaciones de Inmunodeficiencias Primarias
- Link:
- iniciativaalas.org
- Email:
- info@iniciativaalas.org
- Contry:
- Mexico
- Name:
- Fundación Mexicana Para Niñas Y Niños con Inmunodeficiencias Primarias A.C. (FUMENI)
- Link:
- fumeni.org.mx
- Email:
- contacto@fumeni.org.mx
- Contry:
- Mexico
- Name:
- Nemo Foundation
- Email:
- andy@andy.org.mx
- Contry:
- Netherlands
- Name:
- Stichting voor AfweerStoornissen
- Link:
- stichtingvoorafweerstoornissen.nl
- Contry:
- New Zealand
- Name:
- IDFNZ–Immune Deficiencies Foundation of New Zealand
- Link:
- idfnz.org.nz
- Email:
- info@idfnz.org.nz
- Contry:
- Nicaragua
- Name:
- ANIPIDP (Asociacion Nicaraguense de Pacientes Inmunodeficiencias Primarias)
- Link:
- facebook.com/anipidp.2019
- Email:
- asociacion.anipidp@gmail.com
- Contry:
- Norway
- Name:
- Norsk Immunsviktforening
- Link:
- immunsvikt.no
- Contry:
- Peru
- Name:
- ASPAIP–Asociacion Peruana de Ayuda al Inmunodeficiente Primario
- Link:
- datosperu.org
- Email:
- aspaipperu@outloock.com.pe
- Contry:
- Peru
- Name:
- Saving Children with Agammaglobulinemia (Salvando A Los Niños Con Agammaglobulinemia)
- Link:
- savingagammaglobulinemiapatients.org
- Email:
- savingagammapatients@gmail.com
- Contry:
- Poland
- Name:
- Immunoprotect–Association for Patients with Primary Immunodeficiency
- Link:
- immunoprotect.pl
- Email:
- biuro@immunoprotect.pl
- Contry:
- Portugal
- Name:
- APDIP–Associacao Protuguesa de Doentes com Imunodeficiencia Primaria
- Link:
- apdip.pt
- Email:
- geral@apdip.pt
- Contry:
- Portugal
- Name:
- IPOPI–International Patient Organization for Primary Immunodeficiencies
- Link:
- ipopi.org
- Email:
- Info@ipopi.org
- Contry:
- Romania
- Name:
- ARPID–Romanian Association for Patients with Primary Immunodeficiency
- Link:
- arpid.ro
- Email:
- arpid_life@yahoo.com
- Contry:
- Russia
- Name:
- Sunflower–The Association for Primary Immunodeficient Patients
- Link:
- fondpodsolnuh.ru
- Email:
- fond@fondpodsolnuh.ru
- Contry:
- Serbia and Montenegro
- Name:
- POsPID–Support of Persons with Primary Immunodeficiency
- Link:
- pospid.org.rs/sr
- Contry:
- Slovakia
- Name:
- Združenie pacientov s primárnou imunodeficienciou - Slovak Association for PI patients
- Link:
- imunodeficit.sk
- Email:
- info@imunodeficit.sk
- Contry:
- Slovenia
- Name:
- Društvo za pomoč otrokom z imunskimi boleznimi - Slovenian society for children with immune disorders
- Link:
- imuno.si
- Email:
- tadej.avcin@kclj.si
- Contry:
- South Africa
- Name:
- PINSA–Primary Immunodeficiency Network of South Africa
- Link:
- pinsa.org.za
- Email:
- pinsahelp@mweb.co.za
- Contry:
- Spain
- Name:
- ABADIP–Associació Balear de Dèficits Immunitaris
- Link:
- abadip.com
- Email:
- info@abadip.com
- Contry:
- Spain
- Name:
- ACADIP–Associació Catalana de Déficits Immunitaris Primaris
- Link:
- acadip.org
- Email:
- info@acadip.org
- Contry:
- Spain
- Name:
- AEDIP–Asociación Española de Déficits Inmunitarios Primarios
- Link:
- aedip.com
- Email:
- aedip@aedip.com
- Contry:
- Spain
- Name:
- Barcelona PID Foundation
- Link:
- pidfoundationbcn.org
- Email:
- pid_barcelona@pidfoundationbcn.org
- Contry:
- Sudan
- Name:
- SOPPI–Sudanese Organization for Patients with Primary Immunodeficiency
- Link:
- facebook.com/Sudanese-Organization-for-Patients-with-Primary-Immunodeficiency-Soppi-331579087487148
- Contry:
- Sweden
- Name:
- PIO–Primaer Immunbrist Organisationen
- Link:
- pio.nu
- Email:
- info@pio.nu
- Contry:
- Switzerland
- Name:
- SVAI–Schweizerische Vereinigung fur Angeborene Immundefekte
- Link:
- svai.ch
- Email:
- info@svai.ch
- Contry:
- Tunisia
- Name:
- ATun-DIPs - Amélioration de la prise en charge des enfants Tunisiens atteints de Déficits Immunitaires Primitifs
- Link:
- atundips.tn
- Email:
- contact@pasteur.rns.tn
- Contry:
- Turkey
- Name:
- İmmün Yetersizlik - Türk İmmünoloji Derneği
- Link:
- turkimmunoloji.org
- Email:
- turkimmunolojidernegi@gmail.com
- Contry:
- United Kingdom
- Name:
- CGD Society–Chronic Granulomatous Disease Society
- Link:
- cgdsociety.org
- Email:
- hello@cgdsociety.org
- Contry:
- United Kingdom
- Name:
- PID UK–Primary Immunodeficiency UK
- Link:
- immunodeficiencyuk.org
- Email:
- hello@immunodeficiencyuk.org
- Contry:
- United Kingdom
- Name:
- The XLP Research Trust
- Link:
- xlpresearchtrust.org
- Contry:
- United States
- Name:
- CIPO–Canadian Immunodeficiencies Patient Organization
- Link:
- cipo.ca
- Email:
- Info@cipo.ca
- Contry:
- United States
- Name:
- Hereditary Angioedema Association
- Link:
- haea.org
- Contry:
- United States
- Name:
- Hereditary Angioedema Association
- Link:
- haea.org
- Contry:
- United States
- Name:
- Hyper IgM Foundation
- Link:
- hyperigm.org
- Email:
- info@hyperigm.org
- Contry:
- United States
- Name:
- IDF–Immune Deficiency Foundation
- Link:
- primaryimmune.org
- Email:
- idf@primaryimmune.org
- Contry:
- United States
- Name:
- LAPIN–Louisiana Primary Immunodeficiency Network
- Link:
- lapininc.org
- Email:
- lapin@lapininc.org
- Contry:
- United States
- Name:
- NEPIN–New England Primary Immunodeficiency Network
- Link:
- nepin.org
- Email:
- stan@nepin.org
- Contry:
- United States
- Name:
- SAPI-Stanford Alliance for Primary Immunodeficiency
- Link:
- primaryimmune.stanford.edu
- Contry:
- United States
- Name:
- SEPIN–Southeast Primary Immunodeficiency Network
- Email:
- cramos@medicalchampion.com
- Contry:
- United States
- Name:
- The CGD Association of America
- Link:
- cgdaa.org
- Email:
- info@cgdaa.org
- Contry:
- United States
- Name:
- Vida por la Vida - Corporación Chilena de ayuda para los Pacientes con Inmuno Deficiencias Primarias
- Email:
- vidaporlavida@gmail.com
- Contry:
- United States
- Name:
- Wiskott Aldrich Syndrome Foundation
- Link:
- wiskott.org
- Email:
- info@wiskott.org
- Contry:
- Uruguay
- Name:
- AUPIDP–Asociacion Uruguaya de Pacientes con Immunodeficiencias Primarias
- Link:
- facebook.com/aupidp.inmunodeficienciasprimarias
- Email:
- aupidp@gmail.com
- Contry:
- Venezuela
- Name:
- ACIDP-Inmunodeficiencias Primarias Venezuela Asociación Civil
- Link:
- inmunodeficienciasprimariasvenezuela.blogspot.com
- Contry:
- Vietnam
- Name:
- VIET PIPS
- Link:
- facebook.com/Suygiammiendichbamsinh
- Email:
- vietpopi.new@gmail.com
- This Year’s Global Movement
- Previous Years
This Year’s Global Movement
Our Foundation, in collaboration with physician experts at the Jeffrey Modell Centers Network and patient groups from around the world, join together in this global movement the week of April 22nd-29th. The goal is to raise awareness, create dialogue and strengthen the bonds of our community.
We’ve always celebrated World Primary Immunodeficiency Week with a simultaneous launch of thousands of specially designed balloons throughout the United States, around the world, and virtually, stating “If releasing one balloon can help save a life, imagine what one million can do.” Each balloon launched symbolized a newly diagnosed patient.
As always, our goal is to raise awareness, create dialogue and strengthen bonds, globally. Let’s take it one step further and tell the world what we’re hoping for, dreaming of, and wishing for the future.
Together as a community, we’re walking hand in hand as we travel down the yellow brick road now during WPIW and for always!
Previous Years
To view past World PI Week efforts, choose a year below:
- Spy the 10 Warning Signs of PI
- Word JAM
- Immune System Games
- Coloring the Global PI Village
Spy the 10 Warning Signs of PI
Search and find the 10 Warning Signs of Primary Immunodeficiency (PI). Hint: Click below and match the colors in the chart for each item.
WordJAM
Test your skills with a Word JAM below!
Scramble: Guess all of the most common words that can be made from the letters shown. Hint: there is one big word using all the letters.
Search: The objective of these puzzles is to find all the hidden words. The words may be placed horizontally, vertically, or diagonally.
Immune System Games
Test your knowledge about the Immune System with the games below!
Coloring the Global PI Village
The Kids Zone was created as a special place for you to unwind and enjoy some fun activities. To begin the fun, find a cool design from the Global Village and then make it your own. Download a coloring page to get started.
