After Jeffrey’s diagnosis, we saw hepatologists, hematologists, immunologists, rheumatologists, oncologists, and just about every other “ologist” that exists. At the time, there was no support or information network for people to access and learn about Primary Immunodeficiency, unlike virtually every other illness. We established the Jeffrey Modell Centers Network (JMCN) over 20 years ago to meet the rising need for referrals and specialized centers for patients identified with PI, and encourage our mission of earliest possible diagnosis, meaningful treatments, and ultimately, cures.
The JMCN is ever-expanding. Our expert physicians and researchers continually contribute to the cross-continental network, discovering and sharing invaluable medical developments and encouraging equal access to care for the more than 285,000 patients in our database. The network has served the foundation to pursue our goals, raise awareness, and in turn, reduce mortality and morbidity while improving quality of life for as many patients as we can.
All of these ongoing efforts significantly impact the field of immunology on a global scale. We have seen an increase in both diagnosed and treated patients across the globe, advocated for greater access to treatments, and encouraged the implementation of standard of care and best practices. Our JMCN investigators are able to connect with other physicians and researchers from within the network to coordinate studies and facilitate clinical trials, optimize research advances, identify new therapeutics targets, and gain a better understanding of genetic mutations.
We are thrilled to have witnessed the drastic improvement in PI patient outcomes due to early recognition, diagnosis, and treatment. Today, after two decades of substantial growth and meaningful work, the JMCN includes 918 physicians at 405 academic institutions in 320 cities and 87 countries, spanning across 6 continents. And these numbers keep growing! It is our sincere hope that the JMCN continues to be a critical catalyst for scientific discovery and progress in support of our work to find cures and treatment for patients living with PI.
Need an immunologist? Find one of our JMCN Expert Immunologists by using the up-to-date search tool on our website: https://info4pi.org/information-booth/find-an-expert.